Long-term health outcomes of people living with spina bifida
Centers for Disease Control - NCBDDD · Birth Defects and Developmental Disabilities - Prevention and Surveillance (93.073)
Publicada 26 ago 2026 · Quedan 17 días
En pocas palabras
Resumen aún no disponible en español; se muestra en inglés.
The US Centers for Disease Control funds research on health outcomes for people with spina bifida through longitudinal data collection in specialized clinics and implementation of the UMPIRE protocol for urologic management in young children. Eligible US applicants include nonprofits, universities, governments and businesses; grants range from 100,000 to 300,000 US dollars, and applications are due by 26 October 2026.
Un resumen generado del texto del donante; la redacción original figura más abajo.
Resumen
Texto original del donante (inglés)
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Extracto de la página del donante. El texto completo, los anexos y los formularios están en la convocatoria original.
Quién puede presentar una solicitud
- Organismo gubernamental
- Institución académica o de investigación
- Empresa privada
- ONG / sociedad civil
Elegibilidad y condiciones
Mostrar el texto de elegibilidad de la fuente · Texto original del donante (inglés)
Applicant types: Special district governments; Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education; Small businesses; Native American tribal governments (Federally recognized); Independent school districts; Private institutions of higher education; State governments; County governments; Public and State controlled institutions of higher education; For profit organizations other than small businesses; City or township governments; Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education