Long-term health outcomes of people living with spina bifida
Centers for Disease Control - NCBDDD · Birth Defects and Developmental Disabilities - Prevention and Surveillance (93.073)
Posted 26 Aug 2026 · 26 days left
In plain terms
The US Centers for Disease Control funds research on health outcomes for people with spina bifida through longitudinal data collection in specialized clinics and implementation of the UMPIRE protocol for urologic management in young children. Eligible US applicants include nonprofits, universities, governments and businesses; grants range from 100,000 to 300,000 US dollars, and applications are due by 26 October 2026.
A generated summary of the donor's text; the original wording is below.
Summary
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Excerpt from the donor's page. The full text, annexes and forms are on the original call.
Who can apply
- government
- academia_research
- private_company
- ngo_cso
Eligibility and conditions
Show the eligibility text from the source
Applicant types: County governments; Private institutions of higher education; Small businesses; Independent school districts; Special district governments; Native American tribal governments (Federally recognized); Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education; State governments; City or township governments; Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education; Public and State controlled institutions of higher education; For profit organizations other than small businesses